I started with alopecia in 1995 when I was eleven years old. I currently have alopecia totalis however it has varied over the years going from areata, to universalis, to full re-growth, to areata, and again to totalis. Having alopecia has been a big part of my life and influenced many life decisions I've made, certainly over the last ten years.
At points I did struggle with it and I think this led me towards the psychological side of things, which resulted in me completing a psychology with health studies degree and an art psychotherapy masters. I focussed both of them around the topic of alopecia where I could, and both of them were hugely beneficial for me and for my understanding of my alopecia journey. At the age of 27 I got involved with Alopecia UK as a volunteer and now at the age of 30 I've become Charity Manager.
I'm incredibly passionate about the work of Alopecia UK because I think there are still so many unmet needs for people with alopecia and I'm keen to see these needs met. It is my belief that those of us with alopecia are very often overlooked and forgotten about.There seems to be a lack of appreciation of what losing your hair can mean for someone and the impact that it can have on identity and sense of self, emotional well-being and ultimately life overall.
I am very passionate about the fact that there needs to be change, change that is going to benefit people with alopecia and so this is what I will continue to work towards. 'We must be the change we wish to see in the world' (Gandhi)